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Policy & Advocacy Overview
Fellowships & Grants
 Genetics & Public Policy Fellowship
Genetic Information Nondiscrimination Act (GINA) Information & Resources for the General
Public
ASHG Response to Request for Information Regarding Sections 101 through 104 of the Genetic Information Nondiscrimination Act (GINA) of 2008
GINA Op-Ed Articles by ASHG’s Executive Vice President, Joann Boughman, PhD
Coalition for Genetic Fairness: “What does GINA Mean? A Guide to the Genetic Information Nondiscrimination Act” - This resource provides a functional outline of GINA’s
protections and how the legislation impacts every individual in the nation. It also includes a history of the legislation, hypothetical situations of genetic discrimination, and key examples and definitions. We encourage individuals and organizations to utilize the guide either as a resource for answering
questions or as a flexible tool to adapt and customize for use within your community.
Johns Hopkins University Genetics and Public Policy Center: “Fact Sheet on the Genetic Information Nondiscrimination Act (GINA)” - Following GINA’s passage, the Center generated this
widely-distributed fact sheet summarizing GINA’s provisions. This resource provides a concise overview of what the current GINA legislation does and does not do. It also provides the terms and definitions of what protections are covered under GINA’s stipulations, as well as an outline of the scope and
enforcement of this legislation.
Public Policy Issues & Position Statements
ASHG
Policy & Position Statement Archives
ASHG & Genetics Advocacy
ASHG Genetics Advocacy Efforts
The Advocates Training Partnership
Program
FASEB Washington Update
Breakthroughs in Bioscience
Other Resources
Public Policy Web Sites of Interest
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