Realizing the benefits of human genetics and genomics research for people everywhere.
In response to a 2011 request for information, ASHG submitted comments on the Advanced Notice of Proposed Rule Making for “Human Subjects Research Protection: Enhancing Protections for Research Subjects and Reducing Burden, Delay, and Ambiguity for Investigators.” The Society proposed adjustments to the review, approval, and follow-up for studies that will facilitate research and improve... Read More
In 2010, ASHG issued a policy statement outlining guiding principles related to patenting and licensing in the genetic testing arena. These principles address protection of intellectual property, quality of testing, and access to testing. Related: Guiding Principles on Protection of Intellectual Property: Patenting and Licensing in the Genetic Testing Arena (April 2010) Read More
In a 2010 commentary in The American Journal of Human Genetics, an ASHG task force analyzed key scientific and non-scientific aspects of genetic ancestry inference in academia and industry, and provided recommendations to advance discussion and facilitate the development of guidelines concerning the use of these technologies. The commentary built upon a previous statement by... Read More
After GINA’s passage in May 2008, ASHG responded to a Federal Register Request for Information on issues related to the law’s implementation. ASHG provided comment on definitions that would ensure the regulations keep pace with scientific and clinical advances, and clarified that data collected prior to GINA’s passage should still be covered by the law.... Read More
In 2007, geneticist James Watson was quoted regarding alleged intellectual inferiority among Africans. ASHG found the comments to be tragically misguided and without scientific foundation. Related: Statement: ASHG response to Recent Comments on Intellectual Ability (November 2007) Read More