Advocacy
Strengthening Diversity in STEM
A leading U.S. research enterprise requires full engagement of the entire STEM talent pool. ASHG supports the STEM Opportunities Act of 2019 to foster inclusivity and diversity in the research workforce. Related: Letter to House Leaders Supporting H.R. 2528 (July 2019) American Physiological Society community letter: to Rep. Eddie Bernice Johnson (Sept. 2020) Read More
Advancing Research and Privacy Protections
The responsible use of large-scale data to advance genetics and genomics research incorporates protections preserving the confidentiality of personal genetic information. ASHG asserts core privacy principles should be applied to all research, regardless of the funding source. Related: AJHG Perspective: Advancing Research and Privacy: Achievements, Challenges, and Core Principles (September 2019) Press Release: ASHG Asserts... Read More
Supporting Access to Genetic Counseling
Genetic counselors are a key part of the delivery of genetic testing in healthcare across the United States, and it is essential that their services are accessible to patients. ASHG strongly supports the Access to Genetic Counselor Services Act. Related: ASHG News: H.R. 7083: Improving Access to Genetic Counseling (December 2018) Letter to House Leaders... Read More
Defining the Responsibility to Recontact
In 2019, ASHG issued a statement outlining whether, and to what extent, there is a responsibility to recontact genetic and genomic research participants when new findings emerge that suggest their genetic information should be interpreted differently. Related: Webinar: Exploring the Responsibility to Recontact (June 2019) Position Statement: Responsibility to Recontact Research Participants after Reinterpretation of... Read More