Advancing Global Data Sharing and Complex Considerations

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Description

ASHG engages policymakers and other influencers to convey the benefits of human genetics and genomics research, and advocates for policies that support research and appropriate uses of genetic and genomic knowledge. This policy forum brings together a range of stakeholders to discuss the value of broad data sharing; engage in thoughtful dialogue about policies that incorporate diverse perspectives and priorities; and raise important considerations when working with historically underrepresented or marginalized populations. The human genomics community is known for open data sharing as it is a tremendous asset to genetic science, and responsible stewardship of human genomic data requires a concerted effort from the broader genomics ecosystem.

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