As part of its continued investment and support of ASHG current and future members, the Society regularly seeks, values, and uses your input. Most recently, a major triennial membership survey in early January of 2022 shows continued strong support and value in the Society’s many programs and highlights potential new directions. Along with your participation... Read More
Posted By: Sara Cullinan, PhD, Deputy Editor, AJHG SC: What prompted you to start working on this project? CG: Everyone on the team is involved in studying the ethical, legal, and social implications (ELSI) of direct-to-consumer genetic testing, and we’ve been paying attention to stories in the media about individuals who have made surprising family... Read More
ASHG recently submitted a response to the NOT-OD-22-029 Request for Information (RFI) from the National Institutes of Health (NIH) pertaining to its Genomic Data Sharing Policy (GDS policy). The GDS policy regulates the expectations and procedures for researchers who generate genomic data as part of their NIH-funded research, as well as for researchers who wish to gain access... Read More
Posted by Evelyn Mantegani, Manager, Public Engagement, Communications and Marketing, ASHG Michael Bauer, PhD, is a member of the Public Education and Awareness Committee (PEAC) and is an Assistant Professor at the University of Arkansas for Medical Sciences in Little Rock, Arkansas. He is a bioinformatician who specializes in cancer genomics using Next Generation Sequencing... Read More
On January 26, 2022, The National Institute of Standards and Technology (NIST) National Cybersecurity Center of Excellence (NCCoE) hosted a virtual workshop on the Cybersecurity of Genomic Data. The event had 593 attendees and 20 presenters, including ASHG 2021 President Gail Jarvik and NHGRI Program Director Heidi Sofia. The workshop represented a collaboration of experts... Read More