Advocacy

This summer, Congress navigated many complex priorities as lawmakers prepared to return to their home districts for August recess. Notably, the House Appropriations Committee approved the fiscal year (FY) 2025 House Labor, Health and Human Services, and Education (L-HHS-ED) bill on a party-line vote. However, this bill still awaits a vote by the full U.S.... Read More

ASHG hosted its annual virtual Capitol Hill Meetings on May 7-9, 2024. Over the course of the three-day event, members of the Government and Public Advocacy Committee (GPAC) joined current and former trainee advocates from the Advocacy Certificate for Human Genetics and Genomics Trainees (ACGT) program to meet with 15 congressional offices. Meeting with policymakers... Read More

In May 2024, ASHG hosted a fourth year of virtual advocacy meetings with policymakers on Capitol Hill. Over the course of a week, participants in the  2024 cohort of the Advocacy Certificate for Human Genetics and Genomics Trainees (ACGT) program joined members of past  ACGT  cohorts and members of the  Government and Public Advocacy Committee (GPAC)  in meetings with 15 congressional... Read More

By Bruce D. Gelb, MD It is a huge honor to join the ranks of ASHG presidents as we look forward to the next three quarters of a century of the Society’s existence. The start of a new presidency is always a time of reflection, introspection, and resolution. By assessing what we have achieved, reviewing what we... Read More

In honor of Rare Disease Week, ASHG staff and over 500 rare disease advocates from across the U.S. took part in the EveryLife Foundation for Rare Disease’s 2024 Legislative Conference in Washington, DC, from February 25-28. During this multi-day event participants were educated on policy proposals impacting the rare disease community ahead of a visit... Read More