Advocacy

The first few weeks of 2021 have brought numerous changes to the federal policy landscape, including the beginning of the new Biden Administration, a new Congress with a Democratic majority in both the Senate and the House of Representatives, and the deadly January 6 attack on the U.S. Capitol and its fallout.  While these events... Read More

Federal laws and policies have a major influence on genetics and genomics research and translation to advances in the clinic and the broader society. It is therefore imperative for ASHG to have a strong voice in how such laws and policies are developed and implemented. Recognizing this, the Society’s public policy and advocacy agenda has... Read More

Each year, Congress is tasked with setting budgets across the federal government, including for the National Institutes of Health (NIH), before October 1, the beginning of the new fiscal year. However, this month we passed the October 1 deadline without Congress passing legislation to accomplish this for Fiscal Year 2021. This means that the size... Read More

Last month, Canada’s Supreme Court issued a key decision on the Genetic Non-Discrimination Act (GNDA), a law passed by the Canadian Parliament in 2017 and supported by ASHG.  GNDA protects individuals from being required to undergo genetic testing or share their genetic information, such as with insurance companies and employers. We sat down with Barbara... Read More