Advocacy

Mary Woolley President, Research!America

Advocating for Research with Mary Woolley, Research!America

Outside Voices: Advocating for Research with Mary Woolley, Research!America December 2019 ASHG: What is the state of support for biomedical research in Washington today? Ms. Woolley: After several years of flat federal funding for research that, due to inflation, nearly wiped out the increases seen during the years of doubling the NIH budget, we have... Read More

Advancing Research and Privacy Protections

Advancing Research and Privacy Protections

The responsible use of large-scale data to advance genetics and genomics research incorporates protections preserving the confidentiality of personal genetic information. ASHG asserts core privacy principles should be applied to all research, regardless of the funding source. Related: AJHG Perspective: Advancing Research and Privacy: Achievements, Challenges, and Core Principles (September 2019) Press Release: ASHG Asserts... Read More

Supporting Access to Genetic Counseling

Supporting Access to Genetic Counseling

Genetic counselors are a key part of the delivery of genetic testing in healthcare across the United States, and it is essential that their services are accessible to patients. ASHG strongly supports the Access to Genetic Counselor Services Act. Related: ASHG News: H.R. 7083: Improving Access to Genetic Counseling (December 2018) Letter to House Leaders... Read More

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