Trainees Advocate on Capitol Hill: 2019 Rally for Medical Research
A Q&A with ASHG advocates and #RallyMedRes participants Grace Kwon and Emily Davenport. Read More
Advocacy
Advancing Research and Privacy Protections
The responsible use of large-scale data to advance genetics and genomics research incorporates protections preserving the confidentiality of personal genetic information. ASHG asserts core privacy principles should be applied to all research, regardless of the funding source. Related: AJHG Perspective: Advancing Research and Privacy: Achievements, Challenges, and Core Principles (September 2019) Press Release: ASHG Asserts... Read More
Supporting Access to Genetic Counseling
Genetic counselors are a key part of the delivery of genetic testing in healthcare across the United States, and it is essential that their services are accessible to patients. ASHG strongly supports the Access to Genetic Counselor Services Act. Related: ASHG News: H.R. 7083: Improving Access to Genetic Counseling (December 2018) Letter to House Leaders... Read More
Patients over Patents: AMP and ASHG Reaffirm that Genes Should Not be Patentable
The Association of Molecular Pathology speaks out against gene patenting. Read More
Take Action this August Recess: Meet Your Elected Officials
As the U.S. Congress begins its August recess, now is a great time to meet with your local elected officials and share your research story. Here's how! Read More