Advocacy

Written by Burcu Darst, ASHG Training and Development Committee Member, Nascent Transcript Lead November 2018  The 2018 Rally for Medical Research took place on September 12-13 in Washington, D.C., in the midst of the fiscal year 2019 budget negotiations for the U.S. National Institutes of Health (NIH). As representatives of ASHG trainees, Lauren Tindale, PhD,... Read More

Policy and Advocacy Activities at ASHG 2018 November 2018  One of the many opportunities afforded by this year’s ASHG Annual Meeting in San Diego was the chance to highlight important policy issues affecting genetics, as well as learn more about the Society’s efforts in policy and advocacy. I attended two sessions at this year’s meeting... Read More

The FY19 NIH budget, passed on time for the first time in two decades, reflects a $2 billion increase that will help advance genetics and genomics research. Read More

Take the ASHG Advocate’s Pledge Today! September 2018 When you and your genetics colleagues take action and communicate your perspective to lawmakers and other stakeholders, ASHG policy and advocacy successes become possible. This is why, in strengthening our commitment to advocacy on behalf of the genetics community, ASHG last month launched an initiative empowering you... Read More

In 2018, a legislative amendment was proposed that would protect the genetic privacy of immigrant families by restricting the use of their genetic material and data to helping reunify family members. The amendment would require that government officials restrict their use of DNA analysis to when it is truly needed and ensure that biological samples... Read More