Advocacy

In May 2023, ASHG hosted its third year of virtual advocacy meetings on Capitol Hill. Both current and several former trainee advocates from the Advocacy Certificate for Human Genetics and Genomics Trainees (ACGT) program participated in this week-long advocacy activity. The ACGT program was launched as part of ASHG’s Government & Public Advocacy Committee (GPAC)... Read More

The recently released White House Office of Science and Technology Policy (OSTP) report, Bold Goals for U.S. Biotechnology and Biomanufacturing, highlights where insights provided by human genetics and genomics are fundamental for the health biotechnology ecosystem and are critical components of the bioeconomy. This report comes after OSTP solicited public input in a Request for... Read More

ASHG, alongside our advocacy partners, continues to help Congress see the impact of human genetics and genomics research, and that robust and sustained funding for the NIH is vital for advancing scientific progress and creating hope. The Messenger recently spoke with a patient participant (who wished to remain anonymous) enrolled in NIH’s Undiagnosed Diseases Network... Read More

ASHG’s proposed language to establish an expanded Community Engagement Alliance (CEAL) program at the National Human Genome Research Institute (NHGRI) was included in the Consolidated Appropriations Act 2023 omnibus bill passed in December 2022. This language establishes a community engagement program to support efforts to increase the participation of individuals historically underrepresented and hesitant to... Read More

ASHG recently responded to a select number of questions in a Request for Information (RFI) from the White House Office of Science and Technology Policy (OSTP) on the National Biotechnology and Biomanufacturing Initiative. OSTP released this RFI to seek public input on how advances in biotechnology and biomanufacturing can help support a strong bioeconomy. The insights... Read More