Advocacy

ASHG, alongside our advocacy partners, continues to help Congress see the impact of human genetics and genomics research, and that robust and sustained funding for the NIH is vital for advancing scientific progress and creating hope. The Messenger recently spoke with a patient participant (who wished to remain anonymous) enrolled in NIH’s Undiagnosed Diseases Network... Read More

ASHG’s proposed language to establish an expanded Community Engagement Alliance (CEAL) program at the National Human Genome Research Institute (NHGRI) was included in the Consolidated Appropriations Act 2023 omnibus bill passed in December 2022. This language establishes a community engagement program to support efforts to increase the participation of individuals historically underrepresented and hesitant to... Read More

ASHG recently responded to a select number of questions in a Request for Information (RFI) from the White House Office of Science and Technology Policy (OSTP) on the National Biotechnology and Biomanufacturing Initiative. OSTP released this RFI to seek public input on how advances in biotechnology and biomanufacturing can help support a strong bioeconomy. The insights... Read More

November 8 saw a midterm election during which all members of the House of Representatives and one-third of the Senate were up for re-election. Democrats retained control of the Senate and Republicans ultimately won only a narrow majority in the House. This will usher in at least two years of divided government, and experts anticipate... Read More

The 10th anniversary of the Rally for Medical Research took place on September 14, 2022. ASHG is proud to have again sponsored this event on Capitol Hill, which brought together 250 participants from more than 30 states and Washington, D.C. to meet with 190 congressional offices. Science advocates were enthusiastic to return to the capital... Read More