Advocacy

U.S. Public Views of Genetics: An ASHG Survey

U.S. Public Views of Genetics: An ASHG Survey

As genetics and genomics knowledge expands rapidly across research and medicine, Americans are excited and optimistic about this area of research and its possible benefits, according to a survey released in January 2020 by ASHG in partnership with Research!America. The survey finds the large majority of Americans agree genetic knowledge will be important to their... Read More

Strengthening Diversity in STEM

Strengthening Diversity in STEM

A leading U.S. research enterprise requires full engagement of the entire STEM talent pool. ASHG supports the STEM Opportunities Act of 2019 to foster inclusivity and diversity in the research workforce. Related: Letter to House Leaders Supporting H.R. 2528 (July 2019) American Physiological Society community letter: to Rep. Eddie Bernice Johnson (Sept. 2020) Read More

Advancing Research and Privacy Protections

Advancing Research and Privacy Protections

The responsible use of large-scale data to advance genetics and genomics research incorporates protections preserving the confidentiality of personal genetic information. ASHG asserts core privacy principles should be applied to all research, regardless of the funding source. Related: AJHG Perspective: Advancing Research and Privacy: Achievements, Challenges, and Core Principles (September 2019) Press Release: ASHG Asserts... Read More

Supporting Access to Genetic Counseling

Supporting Access to Genetic Counseling

Genetic counselors are a key part of the delivery of genetic testing in healthcare across the United States, and it is essential that their services are accessible to patients. ASHG strongly supports the Access to Genetic Counselor Services Act. Related: ASHG News: H.R. 7083: Improving Access to Genetic Counseling (December 2018) Letter to House Leaders... Read More

ASHG Honors Rick Guidotti with ASHG Advocacy Award

Published: Monday, July 22, 2019, 12:00 p.m. U.S. Eastern Time Media Contact: Ann Klinck, 301.634.7342, press@ashg.org Advocate and Photographer to Receive Award at ASHG 2019 Annual Meeting The American Society of Human Genetics (ASHG) has named Rick Guidotti as the 2019 recipient of the Advocacy Award. Mr. Guidotti is the founder and director of POSITIVE... Read More