ELSI

Research Compliance Officers are administrative professionals who ensure that research is being done ethically and in accordance with applicable laws and regulations, most often for a government agency or academic institution. These professionals are experts in both federal and state regulations, as well as industry standards, and advise scientists on laws or regulations which may... Read More

June 2019 As a leading global voice in genetics and emerging technologies, ASHG and its members have been active in recent conversations about establishing international standards about CRISPR genome editing, both within our scientific community and across organizations. When the news broke late last year of genome editing being performed on the embryos of twins,... Read More

Published: Thursday, April 4, 2019, 11:00 a.m. U.S. Eastern Time Media Contact: Nalini Padmanabhan, 301.634.7346, press@ashg.org ASHG, Eight Partner Groups Define Key Issues and Principles ROCKVILLE, Md. – The American Society of Human Genetics (ASHG), along with several co-signing organizations, issued a position statement today outlining whether, and to what extent, there is a responsibility... Read More

Genetic variants are reclassified often, which may alter clinical management. Are researchers responsible for recontacting participants when this happens? Read More

March 2019 As the world’s largest organization for genetics and genomics research, the Society is an important voice on the application of new genetic technologies, and it has become more important than ever given the pace of discovery and application. So it was deeply concerning when news from November’s Second international Summit on Human Genome... Read More