Genetic Testing

Researchers Shed Light on Implications and Impact of Using Direct-to-Consumer and Clinical Genetic Testing in Disease Risk Assessment

Researchers Shed Light on Implications and Impact of Using Direct-to-Consumer and Clinical Genetic Testing in Disease Risk Assessment

PRESS RELEASE Wednesday, October 20, 2010 Media Contact: ASHG Press Office 301-634-7346 press@ashg.org Scientists Present Latest Research Findings on the Public’s Understanding, Use, and Attitudes Toward Personalized Genetic Testing at ASHG 60th Annual Meeting BETHESDA, MD – October 20, 2010 – Thousands of the world’s top scientists and clinicians in the human genetics field will... Read More

Advising on Patenting and Licensing in Genetic Testing

Advising on Patenting and Licensing in Genetic Testing

In 2010, ASHG issued a policy statement outlining guiding principles related to patenting and licensing in the genetic testing arena. These principles address protection of intellectual property, quality of testing, and access to testing. Related: Guiding Principles on Protection of Intellectual Property: Patenting and Licensing in the Genetic Testing Arena (April 2010) Read More

Commenting on Consumer Genetic Testing

Commenting on Consumer Genetic Testing

With the rise of direct-to-consumer (DTC) genetic tests – tests that are ordered directly by consumers and whose results are reported without a health provider’s involvement – ASHG issued a statement in 2007 on such tests that make health-related claims or directly affect health care decision making. The statement includes recommendations to ensure transparency, provider... Read More

Advising on Oversight of Genetic Testing

Advising on Oversight of Genetic Testing

In April 2000, the U.S. Secretary’s Advisory Committee on Genetic Testing issued a set of recommendations for the oversight of genetic testing. ASHG voiced general agreement with the recommendations, and provided comments from the perspective of geneticists to further clarify and refine them. Related: Comments on SACGT Preliminary Recommendations on Oversight of Genetic Testing (May... Read More

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