Government

In September 2024, ASHG advocates attended the 12th annual Rally for Medical Research in Washington, DC, joining the broader biomedical research advocacy community in advocating for medical research awareness and funding. Each September, the Rally for Medical Research brings together doctors, researchers, advocates, and survivors from across the nation to meet with their congressional offices... Read More

Just a few days after winning the election, the incoming Trump Administration began to identify key health policy proposals. Some of these priorities include addressing mental health issues and tackling the opioid overdose crisis, accelerating translational research, and improving rural health. The National Institutes of Health (NIH) remains under scrutiny, with ongoing discussions surrounding its... Read More

For Immediate Release: August 5, 2024, 11:30 a.m. U.S. Eastern Time Media Contact: Kara Flynn, (202) 257-8424, press@ashg.org American Society of Human Genetics (ASHG) President Bruce D. Gelb, M.D., released the following statement in response to the U.S. Senate Appropriations Committee’s approval by a 25-3 vote of the fiscal year (FY) 2025 bill for the... Read More

In honor of Rare Disease Week, ASHG staff and over 500 rare disease advocates from across the U.S. took part in the EveryLife Foundation for Rare Disease’s 2024 Legislative Conference in Washington, DC, from February 25-28. During this multi-day event participants were educated on policy proposals impacting the rare disease community ahead of a visit... Read More

The fall U.S. legislative season will be a busy one and ASHG will be calling on U.S. ASHG members to contact their members of Congress to support and protect funding for the National Institutes of Health. Here is what you need to know – and how and when ASHG may ask for your active engagement. ... Read More