NIH

ASHG’s Response to an NIH RFI on the Genomic Data Sharing Policy

ASHG’s Response to an NIH RFI on the Genomic Data Sharing Policy

ASHG recently submitted a response to the NOT-OD-22-029 Request for Information (RFI) from the National Institutes of Health (NIH) pertaining to its Genomic Data Sharing Policy (GDS policy). The GDS policy regulates the expectations and procedures for researchers who generate genomic data as part of their NIH-funded research, as well as for researchers who wish to gain access... Read More

United States Capitol

ASHG’s Proposed Language for Diversity in Research Participation Incorporated in NIH Funding Bill

The Society’s proposed language on diversity in research participation has been incorporated in the final version of this year’s Senate NIH funding bill. The proposed text included in the bill is below: The Committee recognizes the benefits of broad and inclusive participation in biomedical research for increasing health equity. Research cohorts of diverse genetic ancestry... Read More