Perspectives

Long-standing ethical principles for genetics research help respect and protect research participants, and they are especially important for preventing harm to marginalized or vulnerable populations. Recent reports allege that several genetic studies conducted in China may not have secured individuals’ consent for their participation freely and without coercion. These reports reinforce the need for ASHG... Read More

In 2021, the genetics and genomics community needs to communicate to policymakers how the field of human genetics and genomics is transforming biomedical research and medicine, including its essential role in combatting COVID-19. This is important for ensuring that policies enable a thriving scientific enterprise and provide resources for research advances. Related: AJHG Perspective: How... Read More

ASHG remains committed to its vision that people everywhere realize the benefits of human genetics and genomics research. It is imperative for participation in genetics and genomics research to reflect humanity’s diversity. In engaging with vulnerable populations, it is essential that researchers guard against harm resulting from their participation. Related: Comment to House leaders on... Read More

ASHG supports a woman’s right to make her own reproductive decisions, particularly upon learning that her fetus has a genetic or congenital disorder and has been informed by a licensed or certified health care professional—a view originally articulated in 1991 and reaffirmed and updated in 2020. This includes, among other options, the right to choose... Read More

Continued funding and public support are essential for driving progress in genetics and genomics research. ASHG is committed to supporting members and the greater community in advocating for research to policymakers. Related: ASHG Comments: Advanced Research Projects Agency for Health (ARPA-H) Listening Session (August 2021) AJHG Perspective: Advocating for Genetics and Genomics Research to Policymakers... Read More