Policy

Advocating for Science: ASHG Policy Resources and How to Get Involved

Advocating for Science: ASHG Policy Resources and How to Get Involved

Since the pandemic began, participating in policy and advocacy as scientists has become incredibly challenging.  Interacting with both federal and local representatives has become particularly difficult, as scientists can no longer go to D.C. or to their state legislatures and meet with representatives in person.  This is frustrating, because communicating the importance of scientific research... Read More

ASHG’s Response to an NIH RFI on the Genomic Data Sharing Policy

ASHG’s Response to an NIH RFI on the Genomic Data Sharing Policy

ASHG recently submitted a response to the NOT-OD-22-029 Request for Information (RFI) from the National Institutes of Health (NIH) pertaining to its Genomic Data Sharing Policy (GDS policy). The GDS policy regulates the expectations and procedures for researchers who generate genomic data as part of their NIH-funded research, as well as for researchers who wish to gain access... Read More

NIST Workshop on Cybersecurity of Genomic Data

On January 26, 2022, The National Institute of Standards and Technology (NIST) National Cybersecurity Center of Excellence (NCCoE) hosted a virtual workshop on the Cybersecurity of Genomic Data. The event had 593 attendees and 20 presenters, including ASHG 2021 President Gail Jarvik and NHGRI Program Director Heidi Sofia. The workshop represented a collaboration of experts... Read More