Public Policy

In 2016, the Parliament of Canada debated bill S-201, the Genetic Non-Discrimination Act, which would ensure that all Canadians can benefit from genetics-based clinical advances without fear of genetic discrimination. ASHG has long supported the establishment of strong protections against genetic discrimination worldwide, and as such, advocated in favor of S-201. The bill was signed... Read More

Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Monday, February 1, 2016 12:00 pm U.S. Eastern Time (UTC-05:00) BETHESDA, MD – The American Society of Human Genetics (ASHG) is pleased to announce that Derek T. Scholes, PhD, will join the organization today as its Director of Science Policy. In this capacity, Dr. Scholes... Read More

In 2015 and 2016, ASHG submitted comments to the U.S. Food and Drug Administration (FDA) on two related proposed regulations for Next Generation Sequencing (NGS)-based in vitro diagnostics. Appreciative of being engaged in the process, ASHG submitted comments to further inform and clarify the issue. Related: Comments on “Use of Standards in FDA Regulatory Oversight... Read More

ASHG Media Advisory Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Tuesday, July 28, 2015 2:00 pm U.S. Eastern Time (UTC-05:00) WHEN: Tuesday to Saturday, Oct. 6-10, 2015 WHERE: Baltimore Convention Center, 1 West Pratt Street, Baltimore, MD 21201 WHAT: Invited and platform (oral) sessions and other presentations of the latest... Read More

S. 2744, the Genetic Research Privacy Protection Act, was introduced in the Senate in 2016. This bill, supported by ASHG, would guard against the inappropriate use of the Freedom of Information Act to gain access to research participants’ genetic information, and would build on existing privacy protections by strengthening Certificates of Confidentiality. Its provisions were... Read More