Public Policy

Supporting Research Participant Privacy

June 30, 2015

S. 2744, the Genetic Research Privacy Protection Act, was introduced in the Senate in 2016. This bill, supported by ASHG, would guard against the inappropriate use of the Freedom of Information Act to gain access to research participants’ genetic information, and would build on existing privacy protections by strengthening Certificates of Confidentiality. Its provisions were... Read More

Protecting Genetic Privacy in the Workplace

March 20, 2015

H.R.1313, the Preserving Employee Wellness Programs Act, a 2017 bill, would fundamentally undermine privacy provisions of the Genetic Information Nondiscrimination Act (GINA) and the Americans with Disabilities Act (ADA). Related: Group Letter to House Leaders Opposing H.R. 1313 (March 2017) Letter to House Leaders Opposing H.R. 1313 (March 2017) Press Release: ASHG Opposes H.R. 1313,... Read More

ASHG 2014 Tipsheet: Ethical, Legal, Social, Policy, and Public Health Issues

October 14, 2014

Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Tuesday, October 14, 2014 12:00 pm U.S. Pacific Time (UTC-05:00) WHEN: Saturday through Wednesday, Oct. 18-22, 2014 WHERE: American Society of Human Genetics 2014 Annual Meeting San Diego Convention Center, 111 W. Harbor Drive, San Diego, CA 92101 WHAT: Invited and platform (oral)... Read More

ASHG and NHGRI Award Genetics and Public Policy Fellowship

September 02, 2014

Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Tuesday, September 2, 2014 10:00 am U.S. Eastern Time (UTC-05:00) Fellowship Prepares Geneticists for Careers in Science Policy BETHESDA, MD – The American Society of Human Genetics (ASHG) and the National Human Genome Research Institute (NHGRI), part of the National Institutes of Health,... Read More

ICHG/ASHG 2011 Meeting Plenary Panel Debate Webcast: “Owning the Genome: Gene Patenting and Licensing and Their Impact on Medical Genetics”

October 01, 2011

MEDIA ALERT Media Contact: ASHG Press Office 301-634-7346 press@ashg.org Date: Friday, October 14 Time: 8:00 a.m.–10:00 a.m. Location: Montreal Convention Center, Room 210, Level 2 Online Webcast URL*: http://www.ashg.org/ICHG2011/GenePatenting [*Webcast recording will be posted online and available for viewing by: Friday, October 14 at 11:00 a.m.] The American Society of Human Genetics (ASHG) will be... Read More