Public Policy

Each year, Congress is tasked with setting budgets across the federal government, including for the National Institutes of Health (NIH), before October 1, the beginning of the new fiscal year. However, this month we passed the October 1 deadline without Congress passing legislation to accomplish this for Fiscal Year 2021. This means that the size... Read More

ASHG remains committed to its vision that people everywhere realize the benefits of human genetics and genomics research. It is imperative for participation in genetics and genomics research to reflect humanity’s diversity. In engaging with vulnerable populations, it is essential that researchers guard against harm resulting from their participation. Related: Comment to House leaders on... Read More

Last month, Canada’s Supreme Court issued a key decision on the Genetic Non-Discrimination Act (GNDA), a law passed by the Canadian Parliament in 2017 and supported by ASHG.  GNDA protects individuals from being required to undergo genetic testing or share their genetic information, such as with insurance companies and employers. We sat down with Barbara... Read More

In a time of crisis, it is heartening to see all communities, including the scientific and medical communities, working together and helping one another in big ways or small. As such, ASHG remains dedicated in serving members and others within the genetics and genomics community. One of the ways we are looking to help you... Read More

In the American Journal of Human Genetics this week, ASHG affirms its support for a woman’s right to make her own reproductive decisions, particularly upon learning that her fetus has a genetic or congenital disorder. The Society also articulates its support for laws that enable human fetal tissue research to proceed with appropriate oversight, within... Read More