Research Participants

As genetics and genomics knowledge expands rapidly across research and medicine, Americans are excited and optimistic about this area of research and its possible benefits, according to a survey released in January 2020 by ASHG in partnership with Research!America. The survey finds the large majority of Americans agree genetic knowledge will be important to their... Read More

Published: Wednesday, October 16, 2019, 9:30 a.m. U.S. Central Time Media Contact: Ann Klinck, 301.634.7342, press@ashg.org Findings Reported at ASHG 2019 Annual Meeting HOUSTON, Texas – Researchers are increasingly prioritizing the need for diversity in genetics and genomics research. To help make such studies more inclusive, José G. Pérez-Ramos, MPH and Timothy D.V. Dye, PhD,... Read More

From the President’s Desk: Leslie Biesecker, MD September 2019 It’s hard to believe there is just about a month left until the ASHG 2019 Annual Meeting! As always, I’m excited to connect with new and old colleagues from around the world, and to take in the latest scientific advances and perspectives. This year’s schedule promises plenty of... Read More

Published: Thursday, April 4, 2019, 11:00 a.m. U.S. Eastern Time Media Contact: Nalini Padmanabhan, 301.634.7346, press@ashg.org ASHG, Eight Partner Groups Define Key Issues and Principles ROCKVILLE, Md. – The American Society of Human Genetics (ASHG), along with several co-signing organizations, issued a position statement today outlining whether, and to what extent, there is a responsibility... Read More

In 2019, ASHG issued a statement outlining whether, and to what extent, there is a responsibility to recontact genetic and genomic research participants when new findings emerge that suggest their genetic information should be interpreted differently. Related: Webinar: Exploring the Responsibility to Recontact (June 2019) Position Statement: Responsibility to Recontact Research Participants after Reinterpretation of... Read More