Over 99% of all DNA sequences are identical among all people. The small percentage that is different helps make each person unique. Those small differences explain why some people have blue eyes and others have brown eyes. They explain why some people are colorblind while others can differentiate between turquoise and cerulean. Variation and diversity... Read More
ASHG comments on a new NASEM report evaluating issues and perspectives surrounding return of individual-specific research results. Read More
Media Contact: Nalini Padmanabhan ASHG Communications Manager 301.634.7346 press@ashg.org For Immediate Release Wednesday, December 7, 2016 2:45 pm U.S. Eastern Time BETHESDA, MD – The American Society of Human Genetics (ASHG) commends Congress for strengthening privacy protections for genetics research participants as part of the 21st Century Cures Act (H.R.34) passed on December 7. These... Read More
In response to a 2011 request for information, ASHG submitted comments on the Advanced Notice of Proposed Rule Making for “Human Subjects Research Protection: Enhancing Protections for Research Subjects and Reducing Burden, Delay, and Ambiguity for Investigators.” The Society proposed adjustments to the review, approval, and follow-up for studies that will facilitate research and improve... Read More
In 1999, ASHG and the Genetic Alliance organized a workshop designed to examine the conduct of human genetics research. Workshop attendees identified themes related to research conduct, proposed a new model of relationship between research and participants, and developed a consensus statement and recommendations to advance the new model. Related: Genetic Lay Advocacy Groups: Significant... Read More
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